Main concerns
Write the symptoms, changes or difficulties you most want to discuss. Keep it in your own words. You do not need to explain a cause.
Appointment notes
What to take to an
FND appointment.
This is a way to organise information before you go. It is not medical advice and it does not say what a symptom means.
Written by Beth and Dave, the FND Forward founders. Last updated: 10 September 2026
New, sudden or concerning symptoms
Do not assume a new symptom is FND. Seek urgent medical help if you may be seriously unwell or unsafe. In an emergency, contact the emergency services where you are.
Why write things down first
Beth began capturing symptoms, questions and concerns in the moment so they would not be forgotten or misrepresented later. Brain fog and variable energy can make it hard to hold the right words in the room. Notes are there to support you, not to speak for you.
FND Forward cannot assess symptoms or replace a qualified professional. Use this page to gather what you want to share, then decide what you are comfortable taking in.
Optional prompts
Write what matters.
Skip the rest.
Every section is optional. A few short lines can be enough.
Changes since last time
Note what is new, stronger, quieter or happening differently. Describe what you noticed, not what you think it means.
Questions you want to ask
Capture questions while they are still easy to hold. Diagnosis, referrals, work, mobility, communication and safety are common examples. Use whatever matters to you.
Treatments, strategies or medication
Record what you tried, any changes made and what you noticed afterwards. You do not need to decide what caused a change.
Daily life and support
How have days, communication, mobility, caring, study or work been affected? What support would help you say that clearly?
Anything else
Add what has not fitted elsewhere, including something that feels difficult to say aloud. Leave a section blank if it is not useful today.
What to bring with you
- Your notes, or a Health Summary PDF if you chose to save one
- A short list of current medication or strategies, if that is useful
- Someone who can help you be heard, if you want company
- Time before the appointment to read what you wrote
How FND Forward can help
The app keeps separate appointment plans on your device. You can collect concerns and questions there, then choose what to include at the front of a PDF. Review the file before you share it.
Live records stay encrypted on the phone. Nothing is uploaded to us.